Wednesday 12 November 2014

Illness

I chose a timely moment to write this, my boy is home from school with a stomach bug (you wouldn't think it right now, because he's drinking juice and watching YouTube, but my car stinks of stomach acid from where he puked last night) but ultimately, my motivation for writing this comes from ... you probably guessed. The Supernatural fandom.

Overall, it's a fantastic fandom. Unless you're in it, you probably wouldn't understand totally what it's like, and don't worry, I'm not going to sit here and bang on about it. Any more than I have done anyway.

One of the things I've noticed - and I've noticed it in other areas of my life too, but this one more so perhaps because I met about 500 people, all at once - is that a lot of us do have health problems. Fibromyalgia, MS, BiPolar, arthritis, Aspergers. We're a sickly bunch.

But despite this, it's proportional, you know? I mean, when you consider that fibro, like TTP, has only really had an advancement of study in the past few decades and more information and therefore more diagnoses are becoming prevalent (and in the case with my TTP, it means more lives are being saved so more people are TTP survivors).

However, I have noticed a trend in the last few weeks in the various groups we're all involved in. A trend where people claim that anxiety is a disability - I mean, it can be, but I'm referring to those who have never had a problem before, or who don't seem to have any issue with shouting about their anxiety from the rooftops, which seems like an oxymoron to me. Those people definitely don't have the medical connection - with the announcement that Jensen will be at the next Rogue Convention (fucking meeting DEAN!!!) it's increased sporadically.

I'm sure I've mentioned on here before my own dealings with social anxiety, where I couldn't even hand in my TTP sick notes and my parents had to do it, where I have to talk myself into the simplest of things. One of my best friends has gotten married in the interim of my postings, and I was terrified of going. Someone reposted something on Facebook that I included into my mantra to help me do basic things ("Chuck it in the fuck it bucket and move on") but there is something key here. My social anxiety is a result of the trauma I went through. It's tough, it can seem debilitating, sometimes that fuck it feels like I should be saying 'fuck it, who needs it?' but most importantly? IT IS NOT A DISABILITY.

Like friend A with fibro needs a rest every couple of days and she can live a semi normal life. She has a friend with recurring Lyme disease who developed CFS and he is only functional a couple of days a week. Friend B with fibro has to rest up for a few days after doing anything, because her body will fight her if she tries to do any more. Like friend C whose son is Aspergers, and friend D whose husband and children all have different things wrong.

I'm not trying to shit all over people's problems. I loathe it when people shit all over mine, when they think I'm whining about being tired because my brain damage gets triggered by my fatigue so when I'm feeling like I cannot go on and the only sense I can make is to say "I'm tired". But there is an inherent difference between being medically unable to function and something that's tough but doesn't require medical assistance. And people should understand the finite differences, and act accordingly.

Why is this annoying me? Because I can see a couple of things happening. Perfectly healthy people with no restrictions are suddenly considering asking for disability access, all because Jensen is coming. I get it, I do, he's a huge actor and that makes you anxious which sets off the cycle. But consider this - your anxiety to get five minutes up the queue to see the man triggering your anxiety will have a knock on effect for that Aspergers kid who can't cope with crowds. It's going to make that girl with fibromyalgia sit out something she wanted to do because she cannot cope with the increased access line. They got access to avoid what your anxiety is causing. The knock on effect is that your anxiety makes a tougher con for more people, including the staff who are helping to make the experience a good one for everyone. If it is so important, why did you not buy a ticket early and seek out an upgrade? I know of one upgrade who will be getting access because she has genuine issues ... and that's it. Out of 150 of us (approximately).

What else can I see? I see people using it, going on about it constantly, making it seem like a big deal that they have anxiety and so need pity. No. I'm sorry that you have these issues, I do too, trust me. But there are worse things. There's being told you're brain damaged for a start. There's doctors telling you that the things you took for granted, you can never do again, like walking, or being fully independent, or having children. All because of a legitimate disability. I, and others, battle constantly to even try to function as normal, to do things like we used to because dammit, it's hard enough now without those pleasures life used to give us, without people wanting pity for something others consider a side effect. Yes, it irritates me. I get that it's a big portion of your life, and this will be harsh, but please understand what it's like for those of us with real issues who have to read this over and over. It is minor. And it sickens me that this is the excuse that will be used by so many people to try and get that much closer to Jensen. It makes a mockery of the system, and of those people who are so restricted by their legitimate anxiety that they can barely leave the house.

So reconsider. You have over six months in which to do so. Is your anxiety really so strong that you cannot even go near the crowds (have to wonder why you booked for such a notoriously busy convention, personally) and must have access? Is it general or Jensen-specific anxiety? Does someone else need this more than you? Are you being selfish here, or is it so bad that it's a necessity?

And for the record - no. I wouldn't consider access. I didn't spend seven months of sick leave when I first went into remission fighting to get my brain back and function again to go on disability, so why would I try to access that now? I've done two cons and know what I can cope with (lesson learned at A13: I cannot stay up drinking until 3.30 in the morning and then get up at 5.45 and expect to feel well at all. I went straight from still drunk to hungover to fatigued-and-nonsensical) and know that I don't need it, not when that boy in the wheelchair does. Not while that man's on crutches. Not while that girl is saying she has arthritis. Live within your means, and remember the convention is for everyone who paid a ticket, and not just you.

/end rant. This is the most I've written all day. Whoops.